Time to Update Health Care!
by chelsea-martin on February 4, 2013 - 2:58pm
Billy Shields article posted on February 1st, 2013, on the Global Montreal website indicates that a five year old girl may not be able to get the medication needed for a rare illness due to the RAMQ.
The girl’s father took her to the hospital because he thought she had the flu, the illness turned out to be a very rare genetic disease that affects one person out of a million, called Atypical HUS. The way to treat it is a medication called Soliris which costs 12,000 dollars per injection. The costs were covered while the girl was in the hospital, but as an outpatient the Régie de l'assurance maladie du Québec has to approve covering the medication. The family however, is worried that the daughter’s illness could worsen before they have received approval. A spokesperson from the RAMQ has said that it isn't a matter of if they will cover the costs, but a matter of waiting for the approval to be issued. Paul Brunet, a supporter of the family, states that he feels that it should be covered the same way as car insurance; “no-fault” and that they shouldn't have to wait.
This is a really serious condition; the fact that a five year old girl isn’t getting the treatment she needs because the approval hasn’t been processed yet isn’t fair. The government should create a quicker system to approve these things. It’s a life or death situation, like the parents fear, it could get worse before they get approval and then it will be too late. Medication is expensive, and the fact that here in Canada we have free health care, yet there’s still a possibility that this little girl won’t get her treatment for weeks, is ridiculous. She should be able to get what she needs now. Canada is always so proud of our health care system, but this little girl doesn’t seem to be benefitting yet, I think it’s time Canada finds a quicker way to get patients what they need, before it’s too late.
Billy Shields. "Five-year-old's family faces red tape over Quebec medical expenses for rare illness." Global Montreal 1 Feb. 2013. Web. 4 Feb. 2013.